Fibromyalgia and ME/CFS are syndromes that vary in symptoms and experiences. This makes it difficult to treat. There is no magic bullet which will cure everyone. For some, medication and mild exercise is enough. For others, going gluten free makes a dramatic difference in the pain and fatigue they experience. Then there are people for whom no interventions make a bit of difference.
As I scrolled through my Twitter feed this morning, I came across a couple of links which touted success stories with different types of treatment options. I’ve seen vitamin blends which are supposed to fix your fatigue levels. I don’t know that I fully buy into that, but I at least appreciate that it tells you to consult your doctor. (And Vitamin D on its own does boost my energy.) What bothered me about the treatment I saw today, (I stopped after one because I became annoyed) was that it reels you in with the promise of hope and then, BAM! That’ll be a shitload of money for the cure, please. It feels very snake oil salesman-y.
I understand people need to make a living, but it stinks of bullshit to supposedly have this miracle cure that you used to heal yourself. And you’re willing to share it…for a price. Maybe this isn’t fair of me, but it just rubs me the wrong way.