Lately, I’ve been crushing life. If by “crushing” you mean sucking enormously at managing to keep up with everything. The last several weeks have been filled with doctor appointments, physical therapy, acupuncture, remodeling the kitchen, trying to keep the house from being swallowed by mess, and barely qualifying as a parent and Girl Scout leader. I look around the house each day and feel physically ill by the state of it all. My inability to keep days and activities straight in my head make me worry about what my brain will be like when I’m old and gray. A state of panic chases me and causes me to stumble into the next day.
Treating my fibro
I have finally managed to begin physical therapy and acupuncture. I love water physical therapy! It allows me to use muscles and exercise in ways that I just can’t on land. Therapy on land is transformative. It turns out my SI joint and pelvis were out of alignment. It’s also been really painful to lay on my side/hip. After one session, my PT was able to adjust me, and the extreme tenderness and pain that made me yelp when she touched me was gone. GONE! I’ve also been given very doable home exercises, some of which can be done while I go about my day. At my last session, I found out I have a weak butt. Or weak butt muscles, anyway. My homework is to clench and release my butt.
I have had a few sessions of acupuncture or, as I like to call it, Napping with Needles. The jury is still out on how I feel about it, but I know it’s too soon to tell if it’s making any difference, for good or for ill. I will say that my last session seemed to make all the difference in the world. I am fighting a cold and had gotten very little sleep the night before. I was so bad off that Mike had to drive me to my appointment. Within an hour or so, I felt fantastic! That seems like a pretty big turn around for there not to be some causal link.
One aspect of acupuncture I was not aware of beforehand is that the therapist will manipulate your body and limbs in order to loosen them. That’s fine, but it is difficult to completely relax when the therapist is a man and leaning back makes you crotch-adjacent. Having my torso twisted, side to side quickly, so that my arms shake like cooked spaghetti and my boobs shimmy like the worst burlesque show ever, reduces me to embarrassed giggles. Getting to lay quietly in the dark with soft music for 30 minutes, though, is pretty great. I actively try to avoid falling asleep so no one hears my snoring. I’ve also learned that it’s pretty difficult to clear my mind, as my mind is a chatterbox with an attention deficit.
The second appointment with my new rheumatologist was much improved from the first. My new endocrinologist is awesome; she is absolutely convinced of the existence of fibro and realizes that plenty of other doctors treat fibro patients like crap. Finally, I’ve begun seeing a nutritionist in an attempt to lower my inflammation and lose weight. I love her! She is all about adding the good foods and refuses to forbid foods. Rather than making food bad or off limits, she’s more focused on making foods that will help you achieve your goal a habit. She also understands that a person’s body in chronic pain processes food much differently than a “normal” body. I’ve found myself reaching for better food and not craving a ton of crap.
I’ve been taking Rachael to a slew of doctor appointments lately. She’s been in therapy, as suggested by the psychologist who tested her for ADHD. I’m not sure what, if anything, it’s doing for her. But she seems to like going, and the therapist seems to understand the difficulties of our home. We also had Rachael evaluated by an occupational therapist for handwriting and fine motor skills, as the results of her ADHD testing suggested that those difficulties could be masquerading as an attention deficit. Results said she’s a bit behind and could use some therapy. Since then, her handwriting seems to have improved and she’s not having as many difficulties as she was 5-6 months ago. I may try to have her therapy over the summer. I feel like the harm of pulling her out of class on a weekly basis outweighs the benefit of OT at this point.
Finally, Rachael saw a gastroenterologist a couple weeks ago. She’s suffered with relux and tummy troubles for a long time. While Pepcid has made it better, her pediatrician wants to make sure that any underlying cause is found and corrected, rather than just continuing to treat the symptoms. Rachael is scheduled for a upper endoscopy at the end of June. She was a little nervous, but understood the procedure and was fine…..UNTIL THE DOCTOR SHOWED HER A STUPID CARTOON VIDEO ABOUT THE PROCEDURE! In the video, “Scopey” said that while he was inside, he might take some tissue for a biopsy. So NOW she’s freaking out to the point of losing sleep over it. Dude will get a nastygram over this.
The other major thing taking up most of my time is giving the kitchen cabinets a facelift. I always thought the 20 year old , builder’s grade oak cabinets were disgusting, but getting up close and personal with them showed me that we had been living like animals for 6 years. The amount of filth caked on them and the number of cracks in the wood made my embarrassment for whenever we had company skyrocket retroactively.
I’m so close to being finished. It seems like there is always some hiccup or touch up that prevents me from getting on with things. But I do have one cabinet fully completed.
All that’s left is to affix the knobs, which we haven’t chosen yet. Several doors are ready to be hung, but the hardware store didn’t have enough hinges. Because, of course.
Hopefully I’ll be back blogging regularly again soon. I actually started writing this post weeks ago. But Zoë is snuggling with me and my brain is clear for the first time since I began writing this, so I can finally tell you what’s been going on with me.